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 Coalition for Pulmonary Fibrosis
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1659 Branham Lane
San Jose, CA 95118-5226
(888) 222-8541
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CPF Accomplishments


Now in its sixth year, the CPF remains committed to providing our members, and all those fighting IPF, with the tools and resources they need to combat this devastating disease, while advocating on their behalf for expanded research efforts to find a cure. With your support, the CPF is making great strides in raising awareness of pulmonary fibrosis among patients, families, physicians and a broad spectrum of healthcare professionals impacted by this progressive lung disorder.


The need for IPF education, awareness, and support services has never been greater. It is only through the support from corporations, organizations, medical institutions, and individual supporters that we are able to provide our quality resources and services to the IPF community. Through your generous support, the CPF will continue to provide valuable resources to more than 128,000 IPF patients, caregivers and families, and to the healthcare professionals who treat them.




Approximately 90 percent of CPF contributions directly fund our public and professional education programs. Examples of our achievements include:





- Annually directing more than 90 cents of every dollar contributed to fund patient services and IPF research, making the CPF one of the most efficiently operated nonprofit organizations in the U.S.

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Annually awarding more than $1,000,000 in research grants to leading medical centers to advance new approaches to understanding and treating IPF; examples include a $59,000 grant to the David Geffen School of Medicine at UCLA, a $60,000 grant to the University of Michigan Health System, and $130,000 in grants to the University of Chicago Interstitial Lung Disease Clinic

- Partnering with the American Thoracic Society (ATS) in a grant matching program that has awarded two $100,000, 2-year research gifts in IPF, with two additional $100,000 partnership gifts to be awarded in 2008

- Annually awarding the $15,000 Marvin I Schwarz Research Award - to a U.S. based researcher

- Providing support, including IPF resources, physician referrals, free educational materials, patient resources and support, to tens of thousands of patients and families nationwide

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Establishing more than 40 IPF support groups nationwide, directly supporting nearly 1,000 IPF patients and their families on a regular basis

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Establishing a Basic Research Questionnaire for patients, which serves as one of the largest databases of IPF patient information in the world

- Forming valuable nonprofit partnerships with the American Thoracic Society, the National Coalition of Autoimmune Patient Groups, the Mary D. Harris Memorial Foundation, the Genetic Alliance, and the Anne Harroun Landgraf Foundation, the Caring Voice Coalition, the Pulmonary Paper, and the Second Wind Lung Transplant Association

- Partnered with more than 35 of the nations leading IPF treatment and research centers to improve disease education and awareness, and assist with patient recruitment for clinical trials

- Advancing our national advocacy program, campaign ACT, through hosting three annual National IPF Awareness Weeks, advocating on behalf of our membership, including more than 150 meetings with Members of Congress in Washington, D.C. to raising awareness of IPF and successfully advocating for the passage of H.R. 178 in 2005, which passed the House 401-0 recognizing IPF and the need for increased education, awareness and research

- Publishing educational pamphlets that are peer-reviewed by our world-class scientific advisory and authored specifically for IPF patients: Lets Talk About IPF: Questions and Answers for Patients and Caregivers; Lung Transplant: What Every Patient with IPF Should Know; and Pulmonary Rehabilitation & Oxygen Management for the IPF Patient

- Providing free IPF education seminars for thousands of patients and their families, partnering with centers of excellence such as the University of California - San Francisco, University of Washington Chest Clinic, the Mount Sinai School of Medicine, the University of Minnesota Lung Center, the Dorothy P. & Richard P. Simmons Center for the Study of Interstitial Lung Disease at the University of Pittsburgh Medical Center, the University of Alabama Birmingham, the Cleveland Clinic, the University of Miami School of Medicine, Duke University Medical Center, Inova Fairfax Hospital, the National Heart, Lung, and Blood Institute, and the David Geffen School of Medicine at UCLA, the Yale University School of Medicine, the Emory Center for the Study of Interstitial Lung Disease, The Medical University of South Carolina, Harvard Medical School, John's Hopkins University School of Medicine, and the University of Pennsylvania School of Medicine

- Distributing our CPF Resource Kit free of charge to thousands of newly diagnosed patients and their families

- Providing a comprehensive Web site (www.coalitionforpf.org) with information, resources and services for pulmonary fibrosis patients as well as medical professionals. The CPF site has become one of the world's leading resources for IPF information; an important advocacy tool within the site has helped facilitate an estimated 300 letters from IPF patients to the President and Members of Congress in support of legislation important to the IPF community in 2006

- Raising awareness of IPF in the physician community through the CPF's "What If IPF?" national advertising campaign

- Participating in the annual meetings of the American Thoracic Society and American College of Chest Physicians to help educate physicians on the IPF community resources through the CPF

- Providing A Physician's Guide to IPF for general practitioners and pulmonologists highlighting recent advances and patient management options

- Creating a 'How-to' guide for establishing and maintaining IPF support groups

- Establishing a Free Fundraising Guide to help patients and families raise much needed funding for IPF education and research.




 
 
 
 

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