 |
|
| |||||||||
| The Coalition for Pulmonary Fibrosis (CPF) and National Jewish Medical and Research Center recently launched the first genetic counseling program for patients and families affected by familial pulmonary fibrosis. The telephonic counseling program is operated by National Jewish, and funded by CPF. An estimated 10-15 percent of IPF patients, have a form of the disease that runs in families. Recent research has identified two genetic mutations that are associated with familial pulmonary fibrosis, and tests for those mutations have recently become available to the public. The genetic counseling program provides a qualified genetic counselor, who has expertise in familial pulmonary fibrosis, to discuss by phone various issues surrounding familial pulmonary fibrosis. These can include preparation for and interpretation of genetic tests, and various life decisions, such as having children and planning for the future. Experts recommend talking to a counselor prior to having any genetic tests, so that people are prepared to learn the results. For further information on the Familial Pulmonary Fibrosis Genetic Counseling Program or to speak with a genetic counselor, call (800) 423-8891, ext. 1097. | ||
|
||||||||
|
||||||||
|
